A Tale of Brenda's Advocacy Journey...

Hello it's Trevor, with our monthly tale. This one is going to be completely different, as it's shared with a number of links.

Brenda's true advocacy journey began on April 20, 2012, when she worked with Seth Ginsberg, the co-founder and President of CreakyJoints.

Brenda did a local TV Interview with NBC ND News titled; "Living with RA"

https://www.youtube.com/watch?v=WS3THrbYByw

CreakyJoints made a video of her work advocacy day and that is on YouTube. "Patient Advocate: This Could Be You!"

https://www.youtube.com/watch?v=M6SL48O3TLc

The next year, on March 11, 2013, she had another opportunity to work with the Global Healthy Living Foundation aka CreakyJoints and testified at the ND State Capitol. The whole experience is shared in this blog post.

https://brendasbrainstormandtrevor.blogspot.com/2017/05/a-legislative-tale_7.html


As you know, the bill did end up passing. North Dakota was one of the first 6 states out of 48 and Puerto Rico, that have had this important piece of legislation pass, to protect patients taking or receiving a biologic or biosimilar, when they reach the market. It mainly consists of having to notify both the doctor and patient, in a reasonable amount of time, which one they would be actually receiving.

Brenda continues to be an active member of the 50-State Network via the Global Healthy Living Foundation. You can check it out and if you feel inspired, feel free to join.

https://www.50statenetwork.org/

Brenda is also involved with Patient Partners in Research and Patient Council all associated with the Global Healthy Living Foundation aka CreakyJoints. I will also share a link for CreakyJoints, where Brenda has been a member since 2002.

https://creakyjoints.org/

She also had the honor of serving as editor of the CreakyJoints Poet's Corner (& Artists too), for three years. Brenda made copies of each issue and put them into a folder, so she can go back and enjoy, the great talent that was shared.

It keeps evolving for Brenda. She is actually involved in several projects, as this tale is being shared.

We hope you enjoy checking out these various links. It shows that you can live with a chronic condition such as rheumatoid arthritis (RA) and still thrive.

~T Man Barking Off~



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